Patient Support Groups
The following is an alphabetical list of national, regional and local patient support groups for people with skin diseases. They are often run by volunteers who have the disease themselves, and many people find it enormously valuable to have such contact with others both for support and for practical help. These charities may also provide information about research studies, fundraising events and more.
Acne
Anaphylaxis
Basal cell carcinoma
Behcet's Syndrome
Birt-Hogg-Dubé (BHD) Syndrome
Birthmarks
Birthmark Support Group | info@birthmarksupportgroup.org.uk
Bowen's disease
Congenital Melanocytic Naevus
Congenital erythropoietic porphyria
Contact dermatitis
Darier's disease
Darier's Disease Support Group Mrs J Davies 29 St Annes Road Hakin Milford Haven Pembrokeshire SA73 3LQ Tel: (01646) 695055
Degos Disease
Dermatitis herpetiformis
Dermatofibroma
Dermatofibrosarcoma protuberans
Discoid eczema
Discoid lupus erythematosus
Dissecting cellulitis of the scalp
Disseminated superficial actinic porokeratosis
Dystrophic epidermolysis bullosa
Ectodermal Dysplasia
Eczema (atopic eczema)
Ehlers-Danlos
Epidermolysis bullosa simplex
Erythropoietic protoporphyria
Gorlin Syndrome
Granuloma annulare
Hailey-Hailey disease
Hereditary leiomyomatosis and renal cell cancer (HLRCC)
Herpes simplex
Hidradenitis suppurativa
Hypomelanosis of Ito
Ichthyosis
Junctional epidermolysis bullosa
Juvenile xanthogranuloma
Lentigo maligna and melanoma in situ
Lichen planopilaris
Lichen planus
Lichen sclerosus
Lipoedema
Lymphangiomatosis
Lymphoedema
Lymphoma
Male genital lichen sclerosus
Marfan Syndrome
Marfan Association UK
Mastocytosis
Melanoma - Stage 1
Melanoma - Stage 2
Melanoma - Stage 3
Melanoma - Stage 4
Melasma
Morphoea
Mycosis fungoides
Myositis
Necrobiosis lipoidica
Neurofibromatosis
Nodular prurigo
Oral lichen planus
Other national support groups
Pemphigoid
- The International Pemphigus and Pemphigoid Foundation
Bullous Pemphigoid | Mrs E Evendon (01392) 431 362
- PEM Friends