Patient Support Groups
The following is an alphabetical list of national, regional and local patient support groups for people with skin diseases. They are often run by volunteers who have the disease themselves, and many people find it enormously valuable to have such contact with others both for support and for practical help. These charities may also provide information about research studies, fundraising events and more.
Congenital erythropoietic porphyria
Darier's Disease Support Group Mrs J Davies 29 St Annes Road Hakin Milford Haven Pembrokeshire SA73 3LQ Tel: (01646) 695055